This project aimed to develop, in partnership with IXICO (a digital health company) and people with dementia, an online platform called MyBrainBook which puts people in control of the care and support they receive.
MyBrainBook is an electronic tool/device which is used people with dementia, with support from trained facilitators, to store information about themselves - who they are, friends and family, interests, likes and dislikes, how they wish to be supported now and in the future. This information is used to inform their own personalised care and support plan which is owned by the person with dementia, and shared with people and organisations of their choosing to help keep in contact and coordinate care and support.
In May 2014, the Health Innovation Network re-launched The South London Care and Nursing Home Network, previously hosted by the Health Innovation and Education Cluster (HIEC). This network comprises approximately 350 homes for older people.
The Health Innovation Network is committed to working with care and nursing homes in South London to disseminate innovation and best practice in the sector and provide a support network for smaller care home providers. We engage with this large stakeholder group through regular newsletters and events.
Peer support for people with dementia and carers is routinely advocated in national strategies and policy as a post-diagnostic intervention. However there is limited evidence to demonstrate the value or peer support and provision of peer support is variable in different geographical areas which means some people have limited access to it.
The Health Innovation Network worked in partnership with leading older people and dementia organisations and with people with dementia, to develop a resource to promote and encourage more peer support opportunities for people with dementia by helping community organisations set up and run peer support groups or make existing older people groups dementia friendly.
This work included a social return on investment (SROI) study to quantify the benefits of peer support for people with dementia.
The Dementia team are working with care workers to evaluate the viability of conducting memory evaluation in residential care settings as a precursor to recommending residents be tested for Dementia, to ensure people receive the appropriate care.
Existing tools to measure patient experience are often inaccessible to patients, especially to people with dementia. Patient Opinion, an independent feedback service that aims to promote honest and meaningful conversations between patients and health services, was identified as a tool to pilot in hospitals across South London.
Using Patient Opinion supported NICE Quality Statement 15 on patient experience, that states methodologies used for patient feedback should effectively represent the views of a wide range of patients. It was hoped that using Patient Opinion would allow staff to be guided in their behaviour by patients and carers, rather than simply national policy or targets.
We are working with the creators of the revolutionary training package, Barbara's Story, to develop this resource for use in a residential care setting.
The Health Innovation Network worked with The Alzheimer’s Society, Innovations in Dementia and community groups across South London to produce a Resource Pack to promote the importance of peer support opportunities for people with dementia.
Memory services or memory clinics have been set up to provide specialist assessment for diagnosing, treating and supporting people with dementia. Memory clinics are run by health care and social care professionals.
People attending a memory clinic are offered a full assessment to confirm – or rule out - the diagnosis of dementia. This can include memory tests, brain scans, and blood tests.